Go to the site: https://tswresearchgroup.wordpress.com
The Topical Steroid Withdrawal (TSW) Research Group is dedicated to researching Topical Steroid Addiction (TSA) and TSW in the pediatric population to better inform the medical community and the public of this very real adverse effect that can occur with topical steroid use in infants and children diagnosed with eczema. TSA/TSW is also referred to as Red Skin Syndrome (RSS). More information on RSS as well as a support forum can be found at ITSAN.org.
TSW Research Group is not “steroid-phobic.” Topical steroids (TS) are powerful drugs which are effective in decreasing inflammation in various diagnoses–when prescribed, used, and monitored correctly. There are no studies on the effects of long-term topical steroid use on infants and children. TSW Research Group advocates for the portion of the pediatric eczema population for whom TS become ineffective and who develop signs and symptoms of TSW after cessation of TS.
There are still many unknowns, and the body of knowledge on RSS, TSA, and TSW is still developing. Many in the medical community still deny TSW exists. TSW Research Group, LLC looks forward to posing questions and posting information and studies here to stimulate research and advance that knowledge. By educating patients, caregivers, doctors, and researchers about TSA/TSW in children, we can work toward prevention, early detection, and treatment of this horrific condition.
As far as we know, TSA and TSW does not occur in everyone, but you do not want to find out too late that you or your children are predisposed to developing this adverse reaction to topical steroids. One’s best bet is to prevent it. Our challenge is to help others do just that!
Rosemarie A. Curley, MPT, DPT, CSCS