“Thinking Outside the Topical Steroid Box” in Boston

I’m working on my doctorate in physical therapy through Northeastern University in Boston, and, yesterday, I had the pleasure of participating in their RISE 2016 Expo. I did a poster presentation on Topical Steroid Withdrawal (TSW) in children, which summarized my 2015 research/paper “A Systematic Review of Topical Steroid Withdrawal in Children Diagnosed with Eczema.”  It was well-received and was one of the finalists for the research awards.

RISE was a great networking opportunity, and I was able to share information on TSW in children and adults, but BEST of all, I was able to meet Pam, Rob, and their son Ryan! Ryan is 30 months TSW and continues, like my son Brian and many others, on this rollercoaster healing journey.

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Pam, Ryan, Me

Make our kids’ TSW suffering count for something! Keep sharing your stories and spreading awareness about this potential adverse effect of topical steroids with your friends, family, acquaintances, doctors, and anyone who will listen. Help prevent future infants and children from having to go through the ordeal of TSW!

Continuously running slide show with healing picture progression of TSW infants and children

Continuously running slide show with healing picture progression of TSW infants and children (Collages were courtesy of Stephanie from The Home Apothecary.)

"Topical Steroid (TS) Spiral" leading to TSW

“Topical Steroid (TS) Spiral” leading to TSW in susceptible individuals

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TSW Research Group, LLC: Patient perspective in evidence-based practice is dedicated to research and education about TSW in infants and children

TSW Research Group, LLC and ITSAN brochures at RISE 2016 Expo

TSW Research Group, LLC and ITSAN brochures at RISE 2016 Expo

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Abstract # 1035 “Topical Steroid Withdrawal (TSW) in Children” is a finalist: Top 30 of 412 presenters and 1 of just 3 chosen from the Graduate Health Sciences category.

 

A special thank you to ITSAN for sharing their brochure on Red Skin Syndrome and to Pam from Creative Pear Marketing & Design, Stephanie from The Home Apothecary, Heather, Nicole, and the TSW Research Group, LLC think tank for their collective efforts in raising awareness of TSW and providing support and encouragement for those affected by TSW.

Poster references and poster & paper acknowledgements

Poster references and poster & paper acknowledgements

LORD, you establish peace for us; all that we have accomplished you have done for us.”

Isaiah 26:12

8 thoughts on ““Thinking Outside the Topical Steroid Box” in Boston

    • Thanks, Nita! The Expo itself was fun, but Izzy & Co. made it even more enjoyable. We’re blessed to have families who love to laugh. It gets us through a lot of tough times. 🙂

  1. Rosemarie, You continue to inspire and amaze me. I’m blessed to share this journey with you and Brian. It was so wonderful to meet you during our trip to DC and your trip to Colorado this past year; I’m so glad that Pam and Ryan got to experience your energy and laughter as well! You are the voice of our children. I can never fully express how grateful I am to you for doing that, since I temporarily lost my ability to share my voice on my blog starting after months 18 for my son. He’s 30 months now, and I’ll try to refind that voice. This journey with it’s roller coaster of symptoms and teasing of being healed only to spiral down again is so hard. Doctors don’t get how hard they make this. Thank you again.

    • Thank you, Heather. You were a constant source of information, support, and encouragement when I “met” you in the ITSAN forum in 2013. I couldn’t believe how positive and uplifting you were even when you were in the midst of TSW with L, yourself, and you kept us going. Thank you for that, friend!

    • Thank you, Stephanie! Your faith, blog, collages, healing balms, and Isaiah’s story have helped us and so many others going through TSW. I appreciate all you do! ❤

  2. Wow, I am doing a research study on self esteem for college students … I so wish I could have done something like this.

    Great Work!

    • Thank you, Frankie. I’m sure there’s got to be some venue to share your work. I searched and waited for almost a year for an opportunity like this to come along. Keep looking, and don’t give up! Rosemarie

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