TSW Day 607. When the scratching seems non-stop or Brian’s skin is acting crappy or when it feels like Brian’s never going to get better, I look back at one of the early days like day 25 or 50 or one year ago today on the daily Log on this blog and compare it to what’s going on now. Then I see that what’s going on now is still much better than what happened in the past, and it reassures me that Brian continues to heal.
Reading old entries also makes me thankful for what he is now able to do. It reminds me to be thankful that he has been able to go to school without missing a day and is able to sleep in his own bed rather than on the family room floor (which we did for TSW months 2-9.) When I see all his art supplies, tools, gadgets and gizmos, baseball pants, and school papers all over the house and then catch a glimpse of his sneaker sole as he runs out the door to play with friends, I have to catch myself: instead of getting mad that he didn’t pick up before running out, I try to thank God for returning to Brian the energy, enthusiasm, and health that made this mess possible.
If you (or your child) are dealing with the physical manifestations of TSW and are miserable, think back at your lowest functioning point. Are you better off now than then, if even just a little? Have you spent a bit more quality time with family or learned to appreciate the simple things in life, like watching your child with TSW sleeping peacefully, even if it’s just for 10 minutes? The low times in our lives are not for nothing; there is value in simplicity, silence, and solitude.
Challenge yourself to find something each day to be thankful for, to focus on what you can do, and to focus on your blessings. It’s not easy, but as you continue to focus on the positives and always do the best you can with what you have, you’ll soon find yourself several months farther down this TSW road and that much closer to recovery.
This time last year was the start of Brian’s miraculous summer skin clearing. I hope it happens again. His poor little feet could use a break from scratching. He doesn’t seem to let it bother him, though. Beyond the itch, life is good.
“This is the day the LORD has made; we will rejoice and be glad in it!” Psalm 118:24