This is a post from Abby Tai on the Eczema and Topical Steroid Withdrawal-Red Skin Syndrome Support Group on Facebook:
Hi there! I want to share with you that I just interviewed Dr. Peter Lio, a member of the scientific advisory board for the National Eczema Association, on my podcast (The Eczema Podcast). He said that everyone on their board is aware of TSW and they will be doing a lot in the upcoming year to spread awareness about this to doctors. He said they’ll be going city to city to set up conferences to educate doctors, paediatricians, allergists & people in healthcare about TSW so that they can raise awareness of this. So it looks like we’ll be encountering more doctors who will understand TSW & be smarter about prescribing steroids. Just thought I’d share to give you all some hope that our doctors will start to become more educated in this area smile emoticon I also just interviewed the CEO of the National Eczema Association and she talks about TSW at around 17 mins here in this podcast, if you’re interested in checking it out. smile emoticon Just hoping to spread hope wherever possible! http://www.primephysiquenutrition.com/the-eczema-podcast-6…/
Okay, confession time. For years I was opposed to joining Facebook because I figured it would take up too much of my time and my house would fall apart–and it has–but in the few months since I’ve joined because of Brian’s TSW, I’ve met some wonderful people whom I consider true friends, and I’ve seen a lot of good things happening with increased awareness of Topical Steroid Withdrawal (TSW) (aka Red Skin Syndrome). I’ll have to admit, my mother-in-law was right. 🙂 Thank goodness I love her to death, or that would have been really hard to put out there!
For all the big and little TSW warriors out there, your suffering is not in vain. Our prayers are being answered by an almighty God!
“Thanks be to God! He gives us the victory through our LORD, Jesus Christ!” 1 Corinthians 15:57