More answered prayers about TSW and awareness!

This is a post from Abby Tai on the Eczema and Topical Steroid Withdrawal-Red Skin Syndrome Support Group on Facebook:

Hi there!  I want to share with you that I just interviewed Dr. Peter Lio, a member of the scientific advisory board for the National Eczema Association, on my podcast (The Eczema Podcast). He said that everyone on their board is aware of TSW and they will be doing a lot in the upcoming year to spread awareness about this to doctors. He said they’ll be going city to city to set up conferences to educate doctors, paediatricians, allergists & people in healthcare about TSW so that they can raise awareness of this. So it looks like we’ll be encountering more doctors who will understand TSW & be smarter about prescribing steroids. Just thought I’d share to give you all some hope that our doctors will start to become more educated in this area smile emoticon I also just interviewed the CEO of the National Eczema Association and she talks about TSW at around 17 mins here in this podcast, if you’re interested in checking it out. smile emoticon Just hoping to spread hope wherever possible! http://www.primephysiquenutrition.com/the-eczema-podcast-6…/

Woohoo!

Okay, confession time. For years I was opposed to joining Facebook because I figured it would take up too much of my time and my house would fall apart–and it has–but in the few months since I’ve joined because of Brian’s TSW, I’ve met some wonderful people whom I consider true friends, and I’ve seen a lot of good things happening with increased awareness of Topical Steroid Withdrawal (TSW) (aka Red Skin Syndrome). I’ll have to admit, my mother-in-law was right.  🙂 Thank goodness I love her to death, or that would have been really hard to put out there!

For all the big and little TSW warriors out there, your suffering is not in vain. Our prayers are being answered by an almighty God!

“Thanks be to God! He gives us the victory through our LORD, Jesus Christ!”                                                                  1 Corinthians 15:57

Finally! A Response!

What is Topical Steroid Withdrawal (TSW)?  We want everyone to know the answer.

After countless emails to US and international dermatologists, doctors, researchers, genetic CEOs, Facebook founders, journalists, the NEA, the AAD, and anyone else who could possibly help make a change, we got a promising response! Dr. Lio, a dermatologist with Chicago Integrative Eczema Center emailed me back this morning:

Dear Rosemarie,

Many thanks for reaching out. I want you to know that I hear you, I believe in TSW, and I am dedicated to helping make sure that this never happens to any more children or adults! (italics mine) 

All my best and thanks,

Peter Lio, M.D.

 Dr. Lio is a member of the National Eczema Association’s (NEA) Scientific Advisory Committee and part of the NEA task force that just published a study on TSW: A systematic review of topical corticosteroid withdrawal (“steroid addiction”) in patients with atopic dermatitis and other dermatoses. J Am Acad Dermatol. 2015 Mar;72(3):541-549.e2. Epub 2015 Jan 13. DOI: http://dx.doi.org/10.1016/j.jaad.2014.11.024

In addition, Kathy Tullos–ITSAN’s CSD* liason and mom to a little boy almost fully-healed from TSW–was able to talk with him in person at the American Academy of Dermatology Conference in San Francisco yesterday.    * Coalition of Skin Diseases

Never lose hope, and never give up, TSW warriors! Word is getting out, and help is on the horizon!

 Thank you, LORD Jesus, for opening the hearts and minds of doctors and doors of opportunity for the prevention, early detection, and treatment of topical steroid addiction and withdrawal.

“Blessed is he who is kind to the needy.”   Proverbs 14:21

Blogs and Youtube: children and adult TSW warriors

Here is a nice compilation of blogs/videos and other helpful sites about children and adults going through topical steroid withdrawal (TSW).  This list is still under construction, so if you know of a blog/video on TSW/TSA, please contact Ahfaye on her blog or ahfaye@gmail.com

http://byebyesteroids.blogspot.co.nz/p/tsw-warriors.html

Share the list with your doctors and dermatologists. Maybe one or two will be inspired to do research on TSW in children and TSW in adults. If they do, please tell them to contact me. I’m looking for a researcher/physician to assist in research on TSW in children.

Happy first day of Spring!

“With God we will gain the victory, and he will trample down our enemies.”  Psalm 60:12